Lead With Responsibility
How can I become the best patient that I can be – that is my responsibility,
This is the quality that inspires those around us to rise above their best – that can only be a good thing in building an effective team around our challenge.
Shifting Perceptions: Changing the Angle of Attack:
To succeed over cancer is to dismantle the diagnosis, to strip it of its reputational packaging, to see it as it really is, not as you fear it is. It is only then that you will be ready to effectively respond.
Follow the Process: The Process methodically breaks the cancer down into small, winnable pieces. It keeps you focused on conquering each step in front of you now – today, removing the disempowering distractions posed by the enormity of the challenge. One step seamlessly follows the next wearing down the cancer’s defences.” Steve Holmes – Patient
Biliary Tree
Abouts
Sliding Menu (left to Right)
What is ‘Cholangio Challengers’
A space to create your profile as a patient, caregiver, supporter, or family. Profiles can be shared amongst family and friends, workplace colleagues, and the community. A Cholangio Challenger profile galvanises your effort and the collective effort to beat back this disease.
Create a challenge by aligning your efforts with the foundations to help patients. and caregivers to help themselves. To empower their effort. Challengers are helping the foundation ensure that today’s science is more fully utilised for today’s patient survival.
Become Part Of Our Empowered Community Response
The Patient Navigator Journals: An Innovative and Systematic Response to Cholangiocarcinoma
Enhancing the Incumbent Standard of Care:
The Navigator Journals elevate the standard care model by integrating a ‘Patient-Integrated’ response process with the latest medical science breakthroughs. This dynamic, three-part strategy equips newly diagnosed patients with a vital roadmap for effectively tackling cholangiocarcinoma, transforming traditional care approaches into a comprehensive response process.
Systematic Approach to Empowerment:
These journals employ a methodical approach to equip and empower patients, significantly enhancing their ability to more effectively respond. By breaking down the cholangiocarcinoma challenge into manageable steps, the journals prioritise process over outcome, guiding and engaging patients through each step with clarity and focus.
Creating Order and Understanding:
The process detailed in the Navigator Journals establishes order by aligning perceptions with actions, replacing chaos and fear with calm, poise, and purpose. This strategic focus not only shifts attention away from the overwhelming challenges of cancer but also emphasises effective progress at each step. Following a structured process is soothing and reassuring, building understanding and increasing effective engagement, decisions, and action. Effective actions, ultimately improve the chances of successful outcomes.
Leveraging Today’s Medical Science for Today’s Survival:
While scientific and medical research tirelessly pursue tomorrow’s cure, our process offers a crucial response solution, ensuring that today’s patient knowledge and medical science directly benefit today’s patient toolkit and survival.
Cholangiocarcinoma also referred to as ‘CCA’ is a rare and aggressive cancer that begins in the lining of our bile ducts.
In Greek:’Chol’e’ means Bile and ‘angio’ means vessel or container. Bile ducts are thin slender tubes.
Cholangiocarcinoma: Cancer of the Bile Ducts
Cholangiocarcinoma is a type of cancer originating in the bile ducts, which are narrow tubes responsible for transporting bile from the liver to the small intestines. This cancer can develop from inflammation or injury to the delicate lining of the bile ducts, or when genes within our bile and liver cells are altered or damaged, disrupting normal function. Bile, crucial for digestion, aids in breaking down food before it enters the bowels.
Understanding the Biliary Tree
To understand how Cholangiocarcinoma affects the body, it’s essential to grasp the structure of the biliary tree. Picture the bile duct system as a healthy tree, with its roots deep within the liver, gathering bile. This vital fluid is then transported up the trunk—known as the common bile duct—to the canopy, our intestines, where it aids in the breakdown of our food. The Bile Duct tree has just one small branch, the cystic duct, which leads directly to the gallbladder, storing extra bile for when we consume fatty foods.
To fully visualize this and its importance, imagine flipping the tree upside down. In our bodies, the liver is tucked just under our right rib cage and above the stomach and intestines. A healthy bile duct tree is essential for our digestive system’s ability to process food effectively.
Important Locations in our Bile Duct Tree
It’s also important to note that the bile duct tree has three crucial locations:
It’s also important to note that the bile duct tree has three crucial locations:
- Intrahepatic Bile Ducts: These are the bile ducts within the liver, serving as the deepest roots of the tree where bile is collected right from the liver cells.
- Perihilar (Hilar) Bile Ducts: These ducts are located at the liver hilum, where the liver’s bile ducts exit the organ. They form a ‘Y’ shape just outside the liver, representing the point where the roots converge and extend outwards.
- Distal Bile Duct: This part of the bile duct system, also known as the common bile duct, extends beyond the liver and gallbladder. It serves as the main trunk of our metaphorical tree, running towards the intestines. Here, it merges with the pancreatic duct before entering the small intestine, playing a crucial role in the delivery of bile necessary for digestion.
Need to Talk: Call Steve Anytime
+61 415 153 522
+61 415 153 522
Patient & Caregiver-Led Meetings
Any Question – Any Topic
Hosted by Patients Karen O’Hagan-Humphries & Ben Kikuchi
Message Karen | Message Ben
World Cholangiocarcinoma Day
Light Australia Green
90 (and counting) of Australia’s best landmarks are going Green on the 15th of February to signify respect for those who fought hard and have fallen and fortitude to those we fight for today. This is just one step in the process to turn patients into survivors.
Hello, my name is Karen, I am a stage 4 Cholangiocarcinoma patient. The Light Australia Green initiative is my way of contributing ‘something special’ with the opportunity I still have. There can be no greater gift in life than being free to share our knowledge, experience, and wisdom in a manner that provides benefits beyond ourselves. Something that helps make other patient’s lives more liveable and shines a light on what is possible. ‘Light Australia Green’ is that special light and my ‘something special.
Warmest Regards
Karen
Cholangio Challengers
14,000 kms. Ouch!
Cycling Around Australia
I am currently cycling the equivalent of Australia’s coastline for our Cholangio Warriors:
Imagine pedaling the entire coastline of Australia Yip pretty nuts! – that’s 14,000 kms, a challenging journey, but one with a purpose far greater than the distance. Thanks to all those who have jumped on and supported this effort so far, it certainly helps fire up my tiring legs, especially into the many summer cyclonic winds,
Why am I doing this? Because I can, I know what it is like to have all hope ripped away. Sure it has been a long steep climb out of a very dark place, but now I can help others do the same.
I am raising funds to ensure that every patient receives a “Smart Interactive Navigator Journal.” Journals and the accompanying digital toolkits provide a very genuine opportunity to flip the diagnosis and prognosis on its head. Following the process embedded into these journals has often been described as turning on a light switch. Night and Day.
Steve
Ps. Please say gidday anytime
Visit My Cholangio Challenger Page or Follow my ride on Facebook
+61 415 153 522
+61 415 153 522